Our Impact in 2022
People living with ALS and their families come first in everything we do, and everything we do supports the search for effective treatments and cures for ALS. The Nevada Chapter of the ALS Association is committed to improving outcomes for the ALS community through evidence-based approaches, innovation, collaboration, and fiscal responsibility.
The Nevada Chapter exists to ensure that anyone facing ALS has someone to turn to for expert advice, essential equipment and support, community, caring conversations and so much more. Now and always, we remain committed to meeting the needs of individuals and families facing ALS that we service in 16 Nevada counties. Everything we do is made possible by the generosity of the ALS community and those who care about them. Thank you for your ongoing dedication and support of our mission.
Learn more about the impact of your support related to care services, research, and advocacy below:
Nearly 200
People with ALS Served
Care Services Successes
The Nevada Chapter continued to offer critically-needed information, support, and resources to help with the daily challanges of living with ALS. Nearly 200 people with ALS and their loved ones were served in 16 counties throughout Nevada. We offered a wide array of programs, from professional care management to educational webinars and support groups. We also provided direct assistance to people wth ALS and their families for equipment, respite care, transportation and activities that benefit children and teens.
Chapter Grant Program
More than $108,000 was distributed in Quality of Life reimbursement grants to people living with ALS , for a wide array of disease - related expenses.
$108K
Distributed in Grants
137
Pieces of Equipment Delivered
Medical Equipment Loan Program
The Nevada Chapter provides short-term and extended loans of recommended Durable Medical Equipment and Assistive Technology to individuals with ALS. Access to loaned equipment may be necessary because of delays in the acquisition, or some items may not be covered by insurance. In either circumstance, the Equipment Loan Program provides equipment at no cost to the recipient or family. Last year, we loaned more than 100 pieces of Durable Medical Equipment and Assistive Technology devices.
Research Advancements
We helped fuel a significant number of research innovations, advancements in drug development and clinical trials, and new collaborations designed to accelerate the pace of discovery. The ALS Assocation has invested over $122 million in ALS research since the 2014 Ice Bucket Challenge.
Our global approach to funding research serves to fuel the most pomising projects by pioneering ALS scientists. The FDA announced their approval of RELYVRIO (AMX0035). The drug has been shown to slow the progression of the disease and extend life by several months. The ALS Association funded initial research and the Phase 2 clinical trial and worked with additional ALS organizations to advocate for FDA approval.
$122M+
Invested in ALS Research
Where Are Your Donations Going?
132
People attended 30 support groups
63
New Pals served
83
Patients received care and clinical management of ALS through one of our 2 multidisciplinary clinics
48
Home Visits Provided
1,120
Hours of respite care provided at no cost to our families
79
Rides provided free of cost for patients for medical and non-medical trasportation