Support for Caregivers and Families
Caring for someone with ALS is hard work and more than a full-time job. There are resources and volunteer support available to help you care for your loved one with ALS. ALS of Nevada is here to offer direct support like financial responsibility for in-home caregiving, as well as emotional support, advice in dealing with practical issues and access to community resources.
Youth Education and Support Materials
Coping with a loved one's diagnosis of ALS is never easy, but it is especially hard for children and young adults. When a parent or grandparent has any disease, one of the hardest things to do is discuss the illness, progression, and emotions with young ones. Many people may feel a sense of fear that they will harm or scare them by disclosing such personal information. Avoiding the discussion may only serve to create more confusion, blame, or fear in the child and create communication barriers in the family. ALS of Nevada offers many tools and resources for families facing ALS on our website as well as youth support resources.
Hope Loves Company is a non-profit organization that provides emotional and educational support to children and young adults impacted by ALS. They offer camps virtual meet ups, resources and activities for children teens and young adults.
Wonders & Worries provides free, professional support for children and teenagers through a parent's serious illness so that they can reach their full potential. They have resources for discussing illness with children, recommended reading for parents and children and parenting support and tips.