Support for Families
Many ways to support children and young adults with families facing ALS.
Coping with a loved one's diagnosis of ALS is never easy, but it is especially hard for children and young adults. When a parent or grandparent has any disease, one of the hardest things to do is discuss the illness, progression, and emotions with young ones. Many people may feel a sense of fear that they will harm or scare them by disclosing such personal information. Avoiding the discussion may only serve to create more confusion, blame, or fear in the child and create communication barriers in the family. The Nevada Chapter of The ALS Association offers many tools and resources for families facing ALS on our website as well as this special guide for talking with and supporting young adults.